Health, Occupational Therapy, Parenting, sensory processing disorder

Assessment Day

The day has arrived, Grayson was assessed today for Sensory Processing Disorder.  Finally I feel like I am moving forward in this journey, perhaps to a destination now and not just around and around in circles being told I am either making it up, exaggerating, my son is naughty, or that their might perhaps be something wrong.  He is a sweet boy and I have known that something does not add up for a good year or so now.

The clinic we were recommended in Central London, has great feedback, and I trust the OT who recommended it completely, she is a friend of my sisters and is also a specialist in Sensory Processing Disorder, just unfortunately has moved back to SA.

Within five minutes of being with the occupational therapist she told me he is a text book case.  The relief was immense. I left them to it, the session was meant to be just the two of them, no mummy involvement although I would have loved to have been able to spy.  The session was a two hour play based assessment.  I popped for a take away cuppa and came back to the clinic to try and relax whilst impatiently waiting.  Grayson seemed to have a great time, he loved his therapist and assessor and seemed to respond greatly to her.  He is such a sociable little boy, such a chatterbox (hmmmmm I wonder who he gets that from!) I am so blessed that he is like that. I love his personality, even if he does drive me bonkers and is such hard work.

So now the next part of the wait begins, we have to wait two weeks for the parent meeting to discuss the assessment.  It is going to be a long two weeks, I just want to get on with helping him now and helming us all.  Its hard having a child with additional needs, with no guidance or support.  It puts pressure on us all. God knows my relationship is in tatters.

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ADHD, Dyspraxia, Health, Parenting, Uncategorized

My special little man

So Grayson might have Dyspraxia, and possibly ADHD. These are the initial thoughts of my sister who is qualified as a SENCO in school.  Preschool have already confirmed they have concerns, well at least they confirmed this when I raised my concerns.  Having that conversation was massively hard, part of me was so relieved that they were seeing what I was seeing and part of me was devastated. I’ve had a week to get my head around this, and now I’m all about getting support, a diagnosis, or not, and moving forward on this journey.   Thankfully Katie can do the same assessments that the SENCO at the preschool will be doing, so I feel we are slightly ahead of the game in that aspect.  This means I can endlessly google, read anything and everything and add even more to my Pinterest boards!  Probably will also worry myself silly, but hey at least I feel like I am making some progress.  next step is to have the SENCO come into his pre school setting and then refer us on.  The other route is the medical route, so I have made an appointment to see the Health Visitor to get this ball rolling too.  Hopefully we will then get referred to the paediatric team.  It seems its a long winded process whichever route you take so its a case of having fingers in a  lot of pies.  There is also the option of a private route, so I am investigating that too.  I just cannot stand the thought of potentially a two year process, when we could be moving forward and getting him help and support now.

For now I just have to take a deep breath and stay calm when we have a melt down, or run out of M&S directly into the carpark – yes that happened today, and all the other things that happen daily.  Its so hard to know what is direct naughtiness and what is not entirely his fault.  This is going to take some getting used to, and I cannot wait to learn some techniques to help me deal with the behaviours and struggles that he seems to have.  He is such a bright little button, and is so funny and loving.  He is my perfect little man, just maybe with some differences from other children, thats all.  I love him to bits, he truly makes my heart melt, ok he makes my blood boil at times and frustrates me like crazy, but thats all part of being a mummy I think.  We’ll get through this in our own way, we’ll figure it all out and find a way, I know we will.  It just all feels a little unknown and raw at the moment.  My heart hurts.